What is FOP?
What is FOP?
Jul 17, 2018
ifopa.org
7-year-old Luciana Wilken has fibrodysplasia ossificans progressiva (FOP), a very rare genetic disorder causing muscles and tendons to turn into bone. A mother recounts the moment she connected her daughter's symptoms to this rare disease after watching a documentary. It was like a jigsaw, she says, putting all the pieces together. #FOP #GeneticDisorder #RareDisease #MedicalMystery #Inspiration #Hope | Real Stories
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