It was December 2002, Christmas break. My son, Nathan, was 7, and the lights blinking across the living room haloed his skinny frame. Stomping in, he planted his fists on his hips, nailed his feet ...

In March 2020, while a global pandemic was hitting the world, I nervously took my first dose of Trikafta ®. I had read about this breakthrough medication for the most common mutation of cystic ...

It was hard for me to accept that having CF limited my finances as well as my body. But doing so helped me learn how to live within a fixed income and ask for help when I needed it. Living on a fixed ...

No Matter the Distance is the story of Penny, an 11-year-old girl with cystic fibrosis who befriends a lost dolphin in the creek behind her house and hatches a plan to help get the dolphin back to its ...

When I was diagnosed at the age of 7, I really didn’t worry about my mortality — I was 7! Since infancy, my mom and grandmother (who was a nurse) thought there was something wrong with me, but they ...

A little over two years ago, in January 2021, my wife and I started our journey to grow our family. We had discussed having children before we got married, and I told her what I knew about having kids ...