The CF Foundation Patient Registry collects information on the health status of people with cystic fibrosis who receive care in CF Foundation-accredited care centers and agree to participate in the ...

When I was diagnosed at the age of 7, I really didn’t worry about my mortality — I was 7! Since infancy, my mom and grandmother (who was a nurse) thought there was something wrong with me, but they ...

Cystic fibrosis is a convenient disease to have if you want to look skinny in pictures and win a hotdog-eating contest. However, if you're the least bit shy or easily embarrassed, this is not the ...